Since finding out that I have Primary Sclerosing Cholangitis on Friday 6 November I have been utilising all of my Google-fu skills to find out as much as I can. Better to know than not – or at least that is what I thought.
My surfing has thrown up the following possible symptoms as a sign that my PSC is getting worse:
- pain in the upper-right quadrant
- yellowing of eyes and skin.
Unfortunately, this now means that any twinge that I feel in my upper-right area is instantly a sign that I am getting worse.
Any itch that I feel is a sign that my time is ticking away.
And every mirror contains the possibility of the dreaded yellow tint that indicates my liver is about to explode.
I have to keep reminding myself that on average, these symptoms are about 10 years away.
At what point will a twinge just be a twinge and an itch just an itch again? And then, when they are, how will I know when they are not?